Boredom Bingo

One of the things I’m attempting at the moment is to work out the major stresses in our family, and then to try to implement solutions. I’m finding that often the problems are more to do with my attitudes than anything else … however I did work out that my son repeatedly asking for screen-time was a major stress on me.

I’ve always been a bit leery of screens. They seem to me to be the equivalent of fast-food for the brain. Growing up, we only had two channels and they only showed kids TV for two hours a day. So at most I’d watch an hour of TV a day, and an occasional film. I was quite happy writing, drawing, and playing with toys or friends.

Son#1 however, absolutely loves screens. This seems to be characteristic of ADHD – after all, exciting TV and video games require little effort in terms of concentration, and can provide a lot of the stimulation people with ADHD crave.

So I understand the magnetic attraction my son feels for screens. What I find really hard to cope with is his apparent inability to entertain himself without a screen.

During the school holidays and weekends he follows me around asking for more X-box, TV, or games on the kindle. He disputes the rules we had clearly established about screen time during the holidays. He is relentless in this, and as an introvert I find his constant demands for attention and screens exhausting. So we have come up with Boredom Bingo!

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I wrote out a long list of activities that are alternatives to screens. I was careful to involve activities that require Son#1 to think of someone else’s needs and preferences, not just his own – so one is ‘plan a day out for your little sister’, and another is ‘make a card for someone who needs cheering up’. I also wanted him to have some activities that were chores, like putting away toys.

20161001_102638The idea is that any time he feels bored, or when it is not screen time, instead of asking me for screens he can pick an activity off the boredom bingo sheet. When he completes the sheet he gets a small prize (like a bar of chocolate – nothing too expensive!) I’ve put sixteen activities on one sheet, so it should take him at least a week to complete it. He gets the immediate reward of ticking off the activity (or you could offer stickers to a younger child); and the incentive of the reward at the end of the sheet. He also gets the reward of feeling that he has achieved something.

And hopefully, I’ll get a break from the arguments over screen time!

Here’s the link to the pdf if you want to steal the idea for your own family 🙂

boredom bingo

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Thoughts from the pit

I had such a strong vision of how our family was going to be. Thirteen years ago when I said, “I do”, I thought we would have a tribe of happy children, gathered peacefully around the table. With Christmas coming, my vision turns to games played around the fire, stories shared with food, children listening as we whisper the reason for the lights and presents, the joy that we have a Saviour.

I know now that this was an ideal, even in ordinary families. The peace is disrupted by sin, selfishness, illness, and tiredness. Those moments of peace and joy, when they come, are precious.

I think the past ten years have been God slowly prying my fingers loose from my vision. I cling on tightly, because this is what we have been taught to want. Peace, happiness, gently glowing fairy lights and thankful faces.

I think God has a different vision. And now that we have accepted that our oldest son actually has some pretty deep issues, I’ve been working through a process of mourning my vision, and learning to accept and live in what God, in his wisdom, has given instead.

God’s vision is one of self-sacrifice, where we learn to make space for other peoples’ difficulties and differences. It hurts. It means that maybe our family worship times have to be short, snappy, fun, rather than slow, deep and thoughtful. But you know what, that’s where my husband excels. So maybe God’s vision is also one where I learn to let go of control a bit more.

God’s vision is one of forgiveness, where we walk the hard road of saying, “You hurt me, but I’ll accept the pain of that rather than break our relationship”. We are walking with him in this, following the footsteps of Jesus.

God’s vision is one of love, where we show kindness when we are reviled, patience when faced with ingratitude, and persistent generosity when our efforts go unrecognised. We could not learn these things so well if life was always easy, if our children were always obedient and thankful.

If I have learned one thing in this life it is that the harder road is always the better one, though it may hurt. The best things of God are those won through pain, through trial. Just as the best views are found at the top of a rugged mountain path, the greatest love is found through sacrifice.

God knew this. It’s why he allowed sin into the world. It’s why he sent his Son to live here, instead of remaining in perfect peace and joy in heaven. It’s why he allowed us to crucify his deeply loved Son, so that the whole Trinity could enter our brokenness and love to the fullest measure.

God seeks to draw us up into his higher life, his life of sacrificial love, his life of forgiveness and mercy. Will I still fight him? Or will I embrace the opportunities he has given me to experience deeper love, deeper forgiveness, deeper grace?

Diagnosis Story

Most of us resist labels. In an individualistic society we dislike being boxed in, classified with groups of other humans as if our stories are just the same as everyone else’s. Labels can restrict, altering others’ perceptions of us.

ADHD means ‘hyperactive’, ‘troublesome’, ‘difficult’.

Autism means ‘odd’, ‘low intelligence’, and ‘socially awkward’.

I think of the labels I live with. ‘Stay-at-home-mum’ for some means ‘lazy’. ‘Depression’ can mean ‘weak’, ’emotional’, and again, ‘lazy’.

Labels are freighted with associations, and this is why we fear them, because not all of those associations apply to the individual who wears the label.

Yet labels can also bring freedom. Freedom to be ourselves. Rather than always having to hide the things we struggle with, labels allow us some grace. Someone can explain that ADHD sometimes means they blurt out an inappropriate response. “I’m working on it, I don’t mean it personally. Please let me be me, and don’t reject me.”

I feared labelling my son. I did not want people to treat him differently, either by excusing behaviour or assuming negative things about him before getting to know him. But slowly we began to realise that the issues we hoped he would grow out of were not going away, in fact they were getting bigger, and having more of an impact on his life as he got older.

They were also having a greater impact on our family life. His anger is an onslaught, and rises with very little provocation. Far less unpleasant, but just as draining, is his inability to not interrupt, or to wait when he wants something.

Also troubling is the difficulties he has relating to his peers. He shows a noticeable lag in emotional development, and went through a stage of being called ‘annoying’ by all his friends. That seems to have passed, but he still struggles to get involved in games where his rules and ideas are not listened to. He wants control, and gets upset when friends won’t listen.

With high school approaching in September, we realised that he would need help. Homework demands will increase, and at the moment he has meltdowns over a single sheet of maths.

It is intensely frustrating to me that because he shows no educational lag, no one would take us seriously for a long time. If anything he has high intelligence, and is ahead of many of his peers in the classroom. For this reason, the professionals are ruling out ADHD at this moment. I’m not claiming to know more than they do about neurodevelopmental science. But I am an expert on my son. I have observed him, and lived with him, for ten years. I love him deeply. And the autism spectrum disorder which they are leaning towards just doesn’t fit, from my perspective.

Admittedly, he has some traits that flag up concerns – but these all remain in the social development side, and can be exhibited by people with ADHD also.

I’m finding it difficult to convey in brief appointments the feelings and instincts I have. It seems to me that the USA are much further ahead of the UK in terms of research and understanding of these issues, and have broken down ADHD into more streams. Here in the UK we recognise only three. One Dr in the US identifies seven types of ADHD.

Right now I know we have to go through the process. I have to pray, and trust, and wait for the professionals to check every avenue, even if they only rule things out in the end.

But it is my son, and I love him deeply, and I am afraid of them getting it wrong. I am anxious for him. I am anxious for myself, because of the freight of these labels. Autism (even mild) feels terrifying. What will it mean for his future? Will he be employable with that label? Even if it is only mild, and he manages to get to university and gain a first in science? Will it frighten people?

Even ADHD … what will it mean for his long-term relationships? Will anyone want to commit their lives to someone so difficult? So challenging? How will he be with his children? Will he be intensely involved one minute, then distant and engrossed in his work the next?

I know that worrying about the future is unhelpful. Each day has enough trouble in it. I tell my soul to listen to Jesus on this one. The future is in his hands.

But the questions drift like ghosts in the back of my mind. I don’t fully trust the professionals. I feel that the forms we fill in give only a partial picture. And how can a family’s life be condensed into an hour-long appointment?

The educational psychologist will evaluate him in school next week. And right now all I can do is gather information, evidence for what I believe, in the hope that someone will listen.

Off the Map

I promised to explain why I’ve been so quiet for so long.

My husband has been having some issues with his thyroid – a condition called Grave’s Disease. His thyroid goes into overdrive, and it has a profound effect on his whole body. He becomes agitated, irritable, and his heart pounds and races. He can’t sleep, and this makes it hard for him to get out of bed and to be involved in family life.

It kicked off about two years ago now, and tablets brought his thyroid under control. But now it’s happened again, and the doctors want to do a more permanent treatment.

While all this was happening, my husband kept injuring his back. He would be in excruciating pain, and even less able to help out with the kids and family life.

Layered over these issues, we have come to the slow and painful conclusion that Son#1 has ADHD. We’re going through the diagnosis process, which could take a whole blog of it’s own to describe, but from what we have read we are fairly certain that this is what the problem is.

Son#1 has been particularly difficult for many years, but his aggression and persistence seem to be intensifying. Having an explanation helps at one level, but I’ve also been trying to process what on earth this will mean for our family, and for Son#1 in particular. How is he going to cope with high school (starting in September 2019)? What will his life look like when he is fourteen, eighteen, twenty? Will he settle down, or will this be something that dogs him his entire life, limiting him, and damaging relationships?

As we read more about ADHD, it began to dawn on us that perhaps my husband has it also, to a mild degree. And perhaps even his mother and grandfather (it does tend to run in families).

My mind runs in circles as I go over these issues. At one level it is such a relief to have an explanation (other than that we are terrible parents) for our son’s difficult behaviour, and apparent inability to learn simple rules and manage his own emotions. At another level, finding a diagnosis brought an end to my hope that he was just a difficult kid and would outgrow his behaviour. ADHD seems to be a very unpredictable animal – in some people it’s long-term effects are devastating. In others (like my husband) it does add some strain to daily life but not enough to prevent him holding down a steady job and caring for a family.

I feel like I am just emerging from a black hole, or a vicious storm. I’ve been very depressed for quite a few months, just trying to process everything that has happened to us. And through it all, when we have reached out for support from the church we have been turned away.

I’ve shed a lot of tears. I went through a patch of being unable to pray. It felt as though God had just closed the door. I tried very hard to listen to my head and to believe the promises of the Bible, but my overwhelming sense was of being utterly alone.

I guess this blog will become a place for me to share my experiences, partly for my own sake, to process everything we’ve gone through, and perhaps connect with others in similar situations. But also I really hope it will help you, if you are reading. I want you to have an insight into life with ADHD (and other health conditions), so that you can help those who are struggling through the same things. If you are living in a family affected by ADHD I hope I can offer you a story to relate to so you feel less alone. There is shockingly little online for Christians living with ADHD, particularly for the partner/parent without ADHD. Perhaps because the Christian community is still so very bad at accepting weakness.

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This feels like a very muddled blog, and probably isn’t all that clear. I’m hoping to break the issues down over the next few weeks and write them out one by one, providing a clear resource. But right now I’m just relating where we are. I feel a bit like a shipwrecked traveler, washed up on a strange beach. I have no bearings. We are off the map in terms of marriage and parenting, dealing with issues no self-help guide really touches on. Perhaps I can provide some direction to those who follow, to guide you on safer paths than the ones I have trodden.